"Four bald women walk into a bar. The mission is to sort out the many times we have been mistaken for one another. And to compare notes about what it is like to be a woman living with alopecia universalis in New York."
This fine experiential article appeared in the July 30, 2015 NY Times. It speaks by and of the people with the disease and that is important.
Short YouTube, "My Alopecia Story", by Helen Phillips who developed alopecia universalis at age 11.